In August of 2007 our little man Jacob was born. We had no idea that our lives would be so drastically changed by this precious little baby. After time in the NICU and a parade of doctors and specialists, we learned that Jacob has Caudal Regression Syndrome, also known as Sacral Agenesis (type 3-4). He also has a cleft lip and bilateral cleft palate (his lip was fixed in April of 2008).
Since that day it's been a roller coaster ride of doctor visits, hospitals, clinics and surgeries. We learn something new about his condition all the time and now know that he will never be able to walk. He has scoliosis, contracture of the legs, hip and spine deformities and the list goes on. This amazing child has taught me so much about myself in the past 8 months and I'm so thankful that he has come into our home.
This blog is for him - to report on him and to simply write about what his "goings-on" are... !
